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EASING THE WAY

By Suzanne Braun Levine

When my mother died recently at 94, I felt sad at losing her, but also relieved after several years of slow decline during which I always felt I was one degree of deterioration behind in caring for her. And I felt grateful – grateful to her for the loving and gracious way she took her slow leave, and very grateful to the Hospice team that guided our last months together. Thanks to them, she died at home, smiling to the end.

I want everyone to know about the individuals who formed her team and about the services that are offered by the program, which is run by the Visiting Nurse Service of New York – and covered by Medicare. Soon after she was released from her last hospital stay, we were approved for Hospice care and from then on, I felt we were both in good hands. The first consultations were with the intense young Dr. Hutchison, who patiently and sympathetically explained the alternatives that I (as her health care proxy) needed to consider in order to guide my mother’s treatment, and reassuring Nurse Rosalie, who gently introduced me to the likely treatments she would need. (They also reviewed her medications and discarded those that no longer applied under the circumstances.) The conversations took place at my mother’s bedside, with all of us including her with smiles and gentle touches.

From then on, I knew I had a team behind me. I realized that the crisis calls I had been living in dread of for the past five years, would go to their 24-hour hotline first, as her caretakers were instructed. Rosalie or her deputy visited at least once a week, Dr. Hutchison every few weeks and every day at the end. They were joined by Rivka the social worker, who listened with compassion and advised without jargon. None of them spent less than half an hour with her. They, in turn, arranged for other optional services – someone to wash and color her hair, health aides to give her caretakers a few hours off, and a dog trainer who volunteered to bring his golden retriever Daisy on visits to the bedridden. Since she had in her professional life as a social worker, developed just such a program for hospitalized kids, this was an especially poignant gift.

With their support I was free to concentrate on enjoying her laugh, basking in her loving smile, and trying to interpret her unraveling sentences until I just let myself drift along with her. After her peaceful leave-taking, I was reminded of the line from Hamlet, “May flights of angels sing thee to thy rest.” The Hospice team were her angels.

For information on:

The Transition Network Caring Collaborative:

www.thetransitionnetwork.org

“Partners: TTN-Caring Collaborative & Visiting Nurse Service of New York City” (VNSNY): http://bit.ly/aqvQvs

Visiting Nurse Service of New York:

www.vnsny.org


4 Comments »

  • Eileen Williams said:

    What a lovely tribute to both your mother and the team of people who eased her transition. Hospice workers are, indeed, angels– soothing family members through almost unbearable moments of pain and providing much needed information and practical support.

    I’m glad to know that your mother chose to leave her life with a smile on her face. What greater way to part from a loving daughter than with a smile and a hug?

  • marci alboher said:

    Suzanne,
    I did not know that your mom had passed away, and I want to offer my condolences.

    I also want to thank you for sharing this beautiful description of how you handled that final stage. It sounds like you gave your mother a wonderful ending…and that those services you shared with us are available to help others to do the same for their loved ones. I’m sending this right over to my mom as I know your words will help her. We are all working as a team to care for my 95-year-old grandmother, and we too fear and dread the “day.” This note has really calmed me, as I know it will do for my own mom and the cousins who are looking after our nana.

    – Marci

  • Kristine said:

    thank you…for your compassion, insight and honesty. this “loss” feels like one of the last hidden issues for women in mid-life. Many feel so guilty, un-prepared, confused and frustrated. You have turned a light on and i am grateful.

    http://www.themattersthatmatter.wordpress.com

  • Lynne Spreen said:

    Dear Suzanne, I was so sorry to read of your mother’s passing. I am wiping away tears, as it hits close to home.
    I found your site because I wanted to thank you for writing “Inventing the Rest of Our Lives.” I am about a third of the way through it, and just this morning quoted you extensively on my blog, because your frank perspective on what I call the “existential blues” really resonated with me. I hope you’ll stop by and take a look. Thanks again.
    Lynne Spreen
    http://anyshinything.com/2010/07/20/boomer-women-our-best-and-worst-of-times/

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